PanRARE不斷發表正在進行的研究成果,以鼓勵公開分享想法和資訊,從而可以更好地為患者提供護理和支持。
                
                 
                    
                        
                            | # | 標題 | 連結 | 
                    
                    
                        
                            | 1 | Pangenia Genomics' tailor-made genetic testing service provides peace of mind to family affected by Osteogenesis Imperfecta |  | 
                        
                            | 2 | Pangenia Genomics' tailor-made genetic testing service finds a potential genetic cause of mitochondrial myopathy bewildering a family for eight years |  |